SV-ONE envisions a future where all affected by single ventricle heart disease can thrive and live long, fulfilling lives.

WELCOME TO SV-ONE

 
 

SPOTLIGHT

Thanks for attending our Spring 2025 Learning Session!

 

Beginning with 35 care center teams at the first Learning Session in 2009, the journey map showcases how NPC-QIC has grown into a network of 69 pediatric cardiology centers spanning three countries. It underscores key milestones such as the creation of the largest known registry of infants with HLHS, now with over 6,000 enrolled, and the publication of more than 84 shared learnings.

 

GET INVOLVED

ABOUT OUR NETWORK

PATIENTS & FAMILIES

PROSPECTIVE CENTERS & HEALTHCARE PROFESSIONALS

NEWS & HIGHLIGHTS

Featured
NPC-QIC Insights Hub Reporting Site Now Available!
NPC-QIC Insights Hub Reporting Site Now Available!

Our new NPC-QIC reporting site is now available! The Insights Hub provides a secure and dynamic platform for each care center to view their data, as well as the network's aggregate data.

Collection of NPC-QIC Achievements, Quality Improvement Efforts, & Resources Captured in New ‘Journey Map’
Collection of NPC-QIC Achievements, Quality Improvement Efforts, & Resources Captured in New ‘Journey Map’

The NPC-QIC journey map is a comprehensive guide that chronicles the organization's evolution over the last 15 years, highlighting its continuous commitment to improving survival and optimizing the quality of life for infants with hypoplastic left heart syndrome.

UPCOMING EVENTS

Featured
Case Review Conference
Jul 15
Case Review Conference
Case Review Conference
Sep 23
Case Review Conference
Fall 2025 Learning Session
Oct 10
Fall 2025 Learning Session

The Heart of the Matter


Clinicians and parents of SVHD babies share their perspective on the “Heart of the Matter.”