EVENTS
FON Case Review Conference
There is so much that is still unknown concerning how best to manage individuals with single ventricle and a Fontan circulation. While we await development of the Fontan Outcomes Network (FON) registry and data collection, one way for us to make an important difference now is to share experiences and knowledge with each other.
Our network is therefore conducting "FON Case Review Conferences” throughout the year. The purpose is to promote exchange and engagement between FON care centers through patient-based case presentations and discussion, to share knowledge, improve clinical care and promote thoughtful, evidence-based best practices.
Visit fontanoutcomesnetwork.org for additional details.
FON Case Review Conference
There is so much that is still unknown concerning how best to manage individuals with single ventricle and a Fontan circulation. While we await development of the Fontan Outcomes Network (FON) registry and data collection, one way for us to make an important difference now is to share experiences and knowledge with each other.
Our network is therefore conducting "FON Case Review Conferences” throughout the year. The purpose is to promote exchange and engagement between FON care centers through patient-based case presentations and discussion, to share knowledge, improve clinical care and promote thoughtful, evidence-based best practices.
Visit fontanoutcomesnetwork.org for additional details.
FON Case Review Conference
There is so much that is still unknown concerning how best to manage individuals with single ventricle and a Fontan circulation. While we await development of the Fontan Outcomes Network (FON) registry and data collection, one way for us to make an important difference now is to share experiences and knowledge with each other.
Our network is therefore conducting "FON Case Review Conferences” throughout the year. The purpose is to promote exchange and engagement between FON care centers through patient-based case presentations and discussion, to share knowledge, improve clinical care and promote thoughtful, evidence-based best practices.
Visit fontanoutcomesnetwork.org for additional details.
Spring 2024 Virtual Learning Session
Save the date for the FON & NPC-QIC Spring Virtual Learning Session on Tuesday, April 16, 2024.
FON Case Review Conference
There is so much that is still unknown concerning how best to manage individuals with single ventricle and a Fontan circulation. While we await development of the Fontan Outcomes Network (FON) registry and data collection, one way for us to make an important difference now is to share experiences and knowledge with each other.
Our network is therefore conducting "FON Case Review Conferences” throughout the year. The purpose is to promote exchange and engagement between FON care centers through patient-based case presentations and discussion, to share knowledge, improve clinical care and promote thoughtful, evidence-based best practices.
Visit fontanoutcomesnetwork.org for additional details.
January Action Period Call
NPC-QIC Members: Register & join us on Thursday, January 18, 2024 at 3 p.m. ET for our NPC-QIC Action Period Webinar!
Register in advance for this meeting: https://npcqic.zoom.us/j/84933115206?pwd=SzJjWFZ0ZnJON3d2T0RrNVlvK21YUT09
Health Equity Project Webinar
The next Health Equity Project webinar is scheduled for Wednesday, January 17, 2024, from 5 to 6 p.m. EST. Centers will learn how to use a new Health Equity Data Redcap Query Tool for the NPC-QIC database.
Register in advance for the webinar:
https://npcqic.zoom.us/meeting/register/tZcsf-CrrT0jHtNWQZ2RzOvg6qrH5nVaNwOD
After registering, you will receive a confirmation email containing information about joining the meeting.
Questions? Contact info@npcqic.org.
FON Case Review Conference
Host: Rady Children's Hospital-San Diego, UC San Diego School of Medicine
Presenter: Dr. Howaida El-Said, director of the cardiac catheterization laboratory at Rady Children's Hospital-San Diego and professor of clinical pediatrics at UCSD
Topic: Creating a connection of the azygous vein and the Fontan conduit in the catherization lab for a patient with left pulmonary AVMs
There is so much that is still unknown concerning how best to manage individuals with single ventricle and a Fontan circulation. While we await development of the Fontan Outcomes Network (FON) registry and data collection, one way for us to make an important difference now is to share experiences and knowledge with each other.
Our network is therefore conducting "FON Case Review Conferences” throughout the year. The purpose is to promote exchange and engagement between FON care centers through patient-based case presentations and discussion, to share knowledge, improve clinical care and promote thoughtful, evidence-based best practices.
Visit fontanoutcomesnetwork.org for additional details.
FON Case Review Conference
There is so much that is still unknown concerning how best to manage individuals with single ventricle and a Fontan circulation. While we await development of the Fontan Outcomes Network (FON) registry and data collection, one way for us to make an important difference now is to share experiences and knowledge with each other.
Our network is therefore conducting "FON Case Review Conferences” throughout the year. The purpose is to promote exchange and engagement between FON care centers through patient-based case presentations and discussion, to share knowledge, improve clinical care and promote thoughtful, evidence-based best practices.
Visit fontanoutcomesnetwork.org for additional details.
October Action Period Call
RESCHEDULED to November 16: NPC-QIC Members: Register & join us at 3 p.m. ET for our NPC-QIC Action Period Webinar!
Register in advance for this meeting: https://npcqic.zoom.us/meeting/register/tZAqc-mqpj0sGNVpIlK40jLDDGVG4EKC4HBJ
Optimizing Neurodevelopment & Supporting Infant Gross Motor Outcomes Toolkit Webinar
Join the Gross Motor Project co-leads in discussing their recent toolkit and how centers have used it throughout the year.
This webinar features a presentation from Karen Uzark, author of Evaluation of a "tummy time" intervention to improve motor skills in infants after cardiac surgery.
Sarah Mabe Barr from Dell Children’s Medical Center will also be a featured guest to discuss the process of rolling out new sternal precautions at their center.
Register in advance for this meeting here.
https://npcqic.zoom.us/meeting/register/tZcldeirqDoiGdVcW323y0AnmxHp65BPwg6N
Questions? Please email info@npcqic.org.
Health Equity Project Network-Wide Webinar
Join us or a Health Equity Project Webinar featuring a keynote presentation by Sam(ira) Obeid on strategies and tools for having conversations about emotionally-charged topics.
Fall 2023 Learning Session
Register today and join us in Chicago, Illinois on September 22 & 23 for this valuable opportunity for our learning health network to build a stronger sense of community, learn about the network's latest work, and share learnings.
August Action Period Call
NPC-QIC Members: Register & join us on Thursday, August 17 at 3 p.m. ET for our NPC-QIC Action Period Webinar!
Register in advance for this meeting: https://npcqic.zoom.us/meeting/register/tZcpc-6ppjMqHNCKdWqK1HWIE3W-6rcF7agd
Health Equity Project Webinar: Community Engagement to Address Maternal Disparities
All NPC-QIC members are invited to join us on July 27 from 3:00-4:30 p.m. ET for a Health Equity Project Webinar: “Community Engagement to Address Maternal Disparities.”
This webinar will feature keynote speaker, Rolanda Lister, MD, Associate Professor, Division of Maternal Fetal Medicine, Department of Obstetrics & Gynecology, Vanderbilt University Medical Center presenting on Community Engagement to Address Maternal Disparities.
Register in advance for this meeting: https://npcqic.zoom.us/meeting/register/tZIsc-yurD4qE92xjDkcEsGqPbDNhDA_Oy49.
After registering, you will receive a confirmation email containing information about joining the meeting.
Questions? Please contact info@npcqic.org.
Unplanned Reinterventions Project Network-Wide Webinar: A Comprehensive Approach to the Management of Patients With HLHS
All NPC-QIC centers are invited to join us on July 11 from 5:00-6:00 p.m. ET for an Unplanned Reinterventions Project Webinar: "A Comprehensive Approach to the Management of Patients With HLHS"
Presenters: Jennifer Co-Vu and Mark S Bleiweis, University of Florida Health
The talk will provide valuable insights into our institution’s approach to managing patients with single ventricle heart disease, particularly Hypoplastic Left Heart Syndrome (HLHS). The talk will highlight the use of Ventricular Assist Devices (VADs) and hybrid techniques for specific cases, and also UFCHC’s low unplanned reintervention rates, which have significantly improved patient outcomes.
Speakers will also discuss the challenges associated with managing patients with HLHS and the limitations of conventional treatments. They will explain how the comprehensive approach involves combining medical therapy, surgical intervention, and innovative techniques to maximize patient outcomes.
Please register in advance for this webinar: https://npcqic.zoom.us/meeting/register/tZIucu2upzkqEtCEqrVL6_1L1W5Tiz_MKryb
After registering, you will receive a confirmation email containing information about joining the meeting.
Questions? Please contact info@npcqic.org.
Interstage Change Package Webinar
Join us for an Interstage Change Package Webinar on June 27 at 4 p.m. ET.
Please register for this event here: https://npcqic.zoom.us/meeting/register/tZMlcOuhpz8iHd240K2WAto6-hbc1SMFpiSU. After registering, you will receive a confirmation email about joining the meeting.
The “Interstage” is the time period, typically 4-6 months, between the first surgical palliation (S1P – typically a Norwood procedure) and the second (Glenn) operation. It is historically a time of risk for HLHS infants.
Since the Collaborative’s inception, NPC-QIC centers and parent partners have worked together to improve care and outcomes during the Interstage period.
Learn more about the strategies for NPC-QIC clinicians, parents, and researchers to use as they begin or advance Interstage quality improvement (QI) efforts.
Gross Motor Toolkit Webinar
Join us for a Gross Motor Toolkit Webinar on May 17 at 4 p.m. ET.
Please register for this event here: https://npcqic.zoom.us/meeting/register/tZcodumrqz0qGtEq1a1sknnhjyc3wuEyUBeQ. After registering, you will receive a confirmation email about joining the meeting.
Neurodevelopmental disability is a significant concern for individuals with complex congenital heart disease (CHD) across the lifespan. Gross motor delays are common in infants with single ventricle CHD, with greater than 60 percent of NPC QIC-enrolled infants not scoring “on target” at 12 months on the Ages & Stages Questionnaire (ASQ) developmental screener. The early identification and treatment of developmental concerns, starting in infancy, can positively impact the developmental trajectory of these infants.
Join the team to learn more about the toolkit and practices in this area.
Spring 2023 Virtual Learning Session
Register today and join us on Friday, May 5 for this valuable opportunity for our learning health network to build a stronger sense of community, learn about the network's latest work, and share learnings.
Click here to view our high-level agenda! Session objectives include:
Build community, with patients/parents, with clinicians, and across FON and NPC-QIC
Identify opportunities to engage in network activities
Describe current and in-design quality improvement projects
Apply registry learnings to network activities, including improvement & research
Click here to learn more and register for the learning session.
Email info@npcqic.org with any questions or concerns. We look forward to connecting with you soon in the virtual world!
April NPC-QIC Health Equity Project Webinar
Please join us on Thursday, April 6 at 5 p.m. ET for a Health Equity Project webinar featuring a keynote presentation on the Social Determinants of Health, along with Breakout Group discussion.
Registration is required, so please make sure to register in advance for this meeting: https://npcqic.zoom.us/meeting/register/tZIpdOiqrz8rGtX3lK_EQ8zA6W5MMWLONV8a
After registering, you will receive a confirmation email containing information about joining the meeting.
Please note: this webinar is open to all NPC-QIC members. Contact info@npcqic.org with any questions.
April Action Period Call
NPC-QIC Members: Register & join us on Thursday, April 6 at 3 p.m. ET for our NPC-QIC Action Period Webinar!
Register in advance for this meeting: https://npcqic.zoom.us/meeting/register/tZcpfuyqqTkvH9yJFs0Nq6LcdwO_pf4aCrMa
December 15 2022 Action Period Webinar
Join NPC-QIC for our network-wide Action Period Webinar on Thursday, Dec. 15 at 3 p.m. ET.
Fall 2022 Learning Session
Save the dates for our NPC-QIC Fall 2022 Learning Session, taking place Friday, Nov. 11 and Saturday, Nov. 12 at the Hyatt Regency Chicago.
Single Ventricle Connection Chat: Liver Health
Date: Thursday, Oct. 20, 2022
Time: 6:30 to 8 p.m. ET
Topic: Liver Health
Educational Webinar: Birth Control
Date: Thursday, October 6, 2022
Time: 4 to 5 p.m. ET
Theme: Birth Control
September 15 2022 Action Period Webinar
Join NPC-QIC for our network-wide Action Period Webinar on Thursday, Sept. 15 at 3 p.m. ET.
June 16 2022 Action Period Webinar
Join NPC-QIC for our network-wide Action Period Webinar on Thursday, June 16 at 3 p.m. ET.
Spring 2022 Learning Session
Register for our NPC-QIC Spring 2022 Virtual Learning Session, taking place Thursday, April 28 from 11 a.m. to 4:30 p.m. ET.
December 2021 Action Period Webinar
Join NPC-QIC for our network-wide Action Period Webinar on Thursday, December 16 at 3 p.m. ET.
Fall 2021 Learning Session
Join us for the The National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC) Fall 2021 Virtual Learning Session. Our learning sessions have been an invaluable opportunity for parents, patients, caregivers, and care center teams to come together to learn and improve outcomes for individuals with HLHS and their families.
September 2021 Action Period Webinar
Join NPC-QIC for our network-wide Action Period Webinar on Thursday, September 16 at 3 p.m. ET.
Heart University Webinar: Improving Outcomes Through Collaboration
NPC-QIC and the Fontan Outcomes Network (FON) were invited by Heart University to co-sponsor a yearlong webinar series for global learning and engagement to improve the care of patients with single ventricle physiology. Hosted by Heart University, the “Global Single Ventricle Learning Series” is a six-webinar collaboration between parents, physicians, and various Care Center team members taking place August 2020 through June 2021.
This webinar will focus on Improving Outcomes Through Collaboration. Individual speaker names and titles, presentation topics, and the registration link will be posted here as they become available.
Spring 2021 Virtual Learning Session
Register for the NPC-QIC Spring 2021 Virtual Learning Session, taking place on Friday, April 23 from 11 a.m. to 4:45 p.m. ET.