Join us on October 30 at 3 p.m. ET for a virtual info session introducing the SV-ONE Liver Health Quality Improvement Project, focused on improving surveillance and education for Fontan-associated liver disease (FALD). Learn how your center can contribute to better outcomes through collaborative data collection, testing strategies, and shared learning. Whether you're new to the initiative or ready to dive deeper, this session is your chance to connect and get involved—register here.

Join us on  October 28 at 3 p.m. ET for a virtual info session introducing the SV-ONE Neurodevelopment Bridge Quality Improvement Project, focused on improving access to early developmental evaluations for children with Single Ventricle circulation. Learn how your center can participate in this collaborative effort to enhance outcomes and school readiness through timely referrals and assessments. Whether you missed the in-person session at the learning session or want to dive deeper, this is a great opportunity to connect, ask questions, and get involved—register here.

Speakers: Emilee Glenn, Ian Lindsay, MD, and Michelle Ploutz, MD from Primary Children's Hospital Salt Lake City

Topic: Thrombosis and anticoagulation in individuals with a Fontan circulation

The purpose of Case Review Conferences is to share knowledge, improve clinical care and promote thoughtful, evidence-based best practices. To maintain a professional space for peer discussion and learning, these events are intended for SV-ONE clinicians only.

Please contact us if you are interested in hosting a 2026 Case Review Conference.

The purpose of these events is to share knowledge, improve clinical care and promote thoughtful, evidence-based best practices.

The Case Review Conference Planning Committee is excited to share the byproducts of these events with the broader SV-ONE community. Please utilize the resources below to learn more about each topic discussed to date. Please contact us if you are interested in hosting a 2026 Case Review Conference.

Learn more about the transition to SV-ONE during this informational webinar. Care center leads and key contacts should check their email for additional details! Please contact info@npcqic.org if you have questions!

Learn more about the transition to SV-ONE during this informational webinar. Care center leads and key contacts should check their email for additional details! Please contact info@npcqic.org if you have questions!

There is so much that is still unknown concerning how best to manage individuals with single ventricle and a Fontan circulation. While we await development of the Fontan Outcomes Network (FON) registry and data collection, one way for us to make an important difference now is to share experiences and knowledge with each other.

Our network is therefore conducting "FON Case Review Conferences” throughout the year. The purpose is to promote exchange and engagement between FON care centers through patient-based case presentations and discussion, to share knowledge, improve clinical care and promote thoughtful, evidence-based best practices.

Visit fontanoutcomesnetwork.org for additional details.

We are gearing up for our Fall 2024 FON & NPC-QIC Learning in St. Louis, Missouri, from Friday, October 25 to Saturday, October 26. This year, we are excited to offer a Pre-Session, Five Methods of Learning from Data, on Thursday, October 24!

Session Description: Melanie Miner and Drew Warmin (Learning Network Data and Quality Leads) will delve into five methods of learning from network data in the context of a productive learning health system network. These methods have been adapted from The Healthcare Data Guide and have proven effective in driving system-wide improvements across multiple networks. During the session, you will consider how these methods could be utilized in FON and NPC.  After the session, participants will receive references to other network studies that utilize these methods, which include using Shewart charts, observational studies, and planned experimentation.

Fall 2024 Learning Session Objectives:

• Build community with patients, parents, and healthcare professionals on NPC-QIC and FON teams

• Identify recent work and accomplishments within NPC-QIC and FON

• Apply registry/survey data results to network activities, including improvement and research

• Describe the Model for Improvement/Data Analytics in current NPC-QIC and FON improvement projects

• Develop a team 90-day action plan for building or strengthening community with patients and parents

• Discuss topics across lifespan that impact single ventricle care and outcomes

There is so much that is still unknown concerning how best to manage individuals with single ventricle and a Fontan circulation. While we await development of the Fontan Outcomes Network (FON) registry and data collection, one way for us to make an important difference now is to share experiences and knowledge with each other.

Our network is therefore conducting "FON Case Review Conferences” throughout the year. The purpose is to promote exchange and engagement between FON care centers through patient-based case presentations and discussion, to share knowledge, improve clinical care and promote thoughtful, evidence-based best practices.

Visit fontanoutcomesnetwork.org for additional details.

There is so much that is still unknown concerning how best to manage individuals with single ventricle and a Fontan circulation. While we await development of the Fontan Outcomes Network (FON) registry and data collection, one way for us to make an important difference now is to share experiences and knowledge with each other.

Our network is therefore conducting "FON Case Review Conferences” throughout the year. The purpose is to promote exchange and engagement between FON care centers through patient-based case presentations and discussion, to share knowledge, improve clinical care and promote thoughtful, evidence-based best practices.

Visit fontanoutcomesnetwork.org for additional details.

There is so much that is still unknown concerning how best to manage individuals with single ventricle and a Fontan circulation. While we await development of the Fontan Outcomes Network (FON) registry and data collection, one way for us to make an important difference now is to share experiences and knowledge with each other.

Our network is therefore conducting "FON Case Review Conferences” throughout the year. The purpose is to promote exchange and engagement between FON care centers through patient-based case presentations and discussion, to share knowledge, improve clinical care and promote thoughtful, evidence-based best practices.

Visit fontanoutcomesnetwork.org for additional details.

NPC-QIC Members: Register & join us on Thursday, January 18, 2024 at 3 p.m. ET for our NPC-QIC Action Period Webinar!

Register in advance for this meeting: https://npcqic.zoom.us/j/84933115206?pwd=SzJjWFZ0ZnJON3d2T0RrNVlvK21YUT09

The next Health Equity Project webinar is scheduled for Wednesday, January 17, 2024, from 5 to 6 p.m. EST. Centers will learn how to use a new Health Equity Data Redcap Query Tool for the NPC-QIC database.

Register in advance for the webinar:

https://npcqic.zoom.us/meeting/register/tZcsf-CrrT0jHtNWQZ2RzOvg6qrH5nVaNwOD

After registering, you will receive a confirmation email containing information about joining the meeting.

Questions? Contact info@npcqic.org.

• Host: Rady Children's Hospital-San Diego, UC San Diego School of Medicine

• Presenter: Dr. Howaida El-Said, director of the cardiac catheterization laboratory at Rady Children's Hospital-San Diego and professor of clinical pediatrics at UCSD

• Topic: Creating a connection of the azygous vein and the Fontan conduit in the catherization lab for a patient with left pulmonary AVMs

There is so much that is still unknown concerning how best to manage individuals with single ventricle and a Fontan circulation. While we await development of the Fontan Outcomes Network (FON) registry and data collection, one way for us to make an important difference now is to share experiences and knowledge with each other.

Our network is therefore conducting "FON Case Review Conferences” throughout the year. The purpose is to promote exchange and engagement between FON care centers through patient-based case presentations and discussion, to share knowledge, improve clinical care and promote thoughtful, evidence-based best practices.

Visit fontanoutcomesnetwork.org for additional details.

RESCHEDULED to November 16: NPC-QIC Members: Register & join us at 3 p.m. ET for our NPC-QIC Action Period Webinar!

Register in advance for this meeting: https://npcqic.zoom.us/meeting/register/tZAqc-mqpj0sGNVpIlK40jLDDGVG4EKC4HBJ

Join the Gross Motor Project co-leads in discussing their recent toolkit and how centers have used it throughout the year.

This webinar features a presentation from Karen Uzark, author of Evaluation of a "tummy time" intervention to improve motor skills in infants after cardiac surgery.

Sarah Mabe Barr from Dell Children’s Medical Center will also be a featured guest to discuss the process of rolling out new sternal precautions at their center.

View the toolkit

Register in advance for this meeting here.

https://npcqic.zoom.us/meeting/register/tZcldeirqDoiGdVcW323y0AnmxHp65BPwg6N

Questions? Please email info@npcqic.org.